Wow, I can't believe it's been so long since my last update! I'm sure you thought I gave up on my blog. I really did want to update it so many times but, I didn't have the energy and when I did I was doing other things. Also, I found I couldn't concentrate to fill-out simple paperwork.
It's like someone pressed the "pause" button and today I pressed the "play" button! ;)
That clinical trial drug really kicked my butt!!! It was suppose to be minimal side effects but that just wasn't the truth for me anyway. I went on full time disability a week (December 2013) after I started taking this new drug. For 3 months I was basically home bound most of the time. When I look back it was brutal. The good part it was working really well so they allowed me to reduced the dose till I felt I could tolerate it and get good results in my scans. BYL719+Letrozole worked really well for 8 months.
My last scans looked stable, but my pain has been increasing. The scans look good just starting to light up more in the place where the pain is increasing. My doctor is recommending. radiation (ugh) and another clinical trial.
Yep... another clinical trial! See that's the name of the game in Metstatic Breast Cancer.
Treat...(2-3months) Scan....repeat!
So my health update is everything stable so far and the 2 spots on my lungs have been reduced from 2.5 CM to 6-9mm. In my last scan one spot on my lung didn't even register on the scan. It's still there, it's just too small to be noticed with all the other normal nodules on my lungs. So that is good! The name of the game is keep this cancer away from my organs.
My upcoming treatment is I have 5 radiation treatments every other day in San Francisco! Anyone up for a trip? Haha after a one week break I start the new clinical trial drug. I will post about it in my next blog update. I promise to update soon!
Personally, I'm doing well and feel blessed. Jack has been wonderful and I really don't know what I would do without him. Spiritually, this by far this has been a test of faith on so many different levels.
I know this post seems very clinical, so I promise the next posts will have more life events.
Before I go, just want to say HAPPY NEW YEAR!!!!
Hugs!
Jeanne O.
